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A public awareness and a scientific seminar was arranged in Lahore with the collaboration of Jinnah Hospital / Allama Iqbal Medical College (AIMC) on 12/12/2012. The seminar which was held at the AIMC auditorium and was attended by over 150 people mostly effected by Parkinson's disease Mr. Haroon Basheer Chairman PPS in his opening address talked about the lack of awareness in general public but also lack of knowledge among doctors on symptoms and management of the disease. He also went on to thank the principal of AIMC Mr. Shaukat Mahmood for his support and cooperation. In his closing remarks Dr. Mahmood whilst appreciative of the work been done by the Society he also promised to start a Neurology clinic in the Hospital."
The next seminar is planned in February (dates to be announced) in Faisalabad.
Summary of up coming events January to February 2013
1. Support Group at the AKUH Sports & Rehabilitation Centre on Thursday 7th February 2013. Speaker Dr. Sayda Mahvish Hussain will speak on "Oral Hygiene" for Parkinson's patients. (Support Group meeting is held on the first Thursday of each month same time same place)
2.Support group at South City Hospital auditorium on Saturday 23rd February 2013. Presentation on Occupational Therapy. (Support Group meeting is held on the last Saturday of each month, same time same place)
3. Public awareness seminar at Faisalabad on February 2013 (dates to be announced)
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Events
Parkinson’s support group South City Hospital
Last Saturday of each month 12.00-13.00 hours
29 DEC 2012
ADMISSION FREE
Pre Resgistration Mandatory
PARKINSON'S SUPPORT GROUP AT AKUH SPORTS AND REHAB CENTRE
Held first thursday of each month
12.00-1.30 PM
ADMISSION FREE
For more info:
Contact us at; INFO@PARKINSONS.ORG.PK
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Pakistan Parkinson’s Society Support Group Meeting held on 04-10-12
Parkinson’s Support Group Meeting is held every first Thursday of the month at AKUH Sports & Rehabilitation Center. It is a collaborative effort between Pakistan Parkinson’s Society and AKUH.
The main topic for the October meeting was “Gait and Balance Management in Parkinson’s patients”. An interactive session and a detailed interactive presentation was made by Mr. Mohabbat Ali (Incharge Rehabilitation Center)
Almost every attendee asked questions and they themselves also exchanged information. These kinds of Support Group sessions are of great help for the PD patients.
The Pakistan Parkinson’s Society Chairman Mr. Haroon Basheer thanked Mohabbat Ali for efforts put in by him, and in a feedback letter sent to him, he commented;
“The feedback from the recently held support group was excellent and your presentation on ‘Gait and Balance management ‘ was well received. The highly interactive session helped clarify a lot of issues and again demonstrated your / AKUH commitment on being professional and patient focused”.
The Parkinson’s Support Group is a joint initiative of AKUH and Pakistan Parkinson’s Society. The support meets at the AKUH Sports and Rehabilitation center on first Thursday of each month, from 12 to 1.30pm. Details can be obtained from the following numbers: 0300-8967361, (SMS) 0302-8234328, AKUH: 021-34930051 Ext: 1662, Contact: info@parkinsons.org.pk
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Parkinsons Support Group
Jointly organized by the Pakistan Parkinson’s Society (PPS) and
Aga Khan University Hospital Karachi.
Date: Thursday 4 October 2012
Time: 12.00 - 13.30 pm
Admission is free
Venue: AKUH Sports and Rehabilitation Centre
Program:
Opening remarks / Wellness
Haroon Basheer (Chairman PPS)
Interactive Session on Gait & Fall Management in Parkinson’s
Mohabbat Ali (Incharge Advanced Rehabilitation Program)
Closing Remarks: M. Irshad Jan (Director PPS)
Contact: info@parkinsons.org.pk
Telephone: 0300-8967361, (SMS) 0302-8234328, AKUH: 021-34930051 Ext:
1662
Support Group meets first Thursday of each month, same time, same place.
“Those who fight Parkinson’s with knowledge always find solutions”
Pakistan Parkinson's Society
Contact : info@parkinsons.org.pk
Tel: 0300 8220 196
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Parkinsons Support Group
Date: Thursday 5 July 2012
Time: 12.00- 13.30 pm
Admission is free
Venue: AKUH Sports and Rehab centre
Program:
Opening remarks Wellness / Speech impediments revisited
Non Motor symptoms awareness / management
Consultant / Neurologist AKUH
Haroon Basheer Chairman PPS
Dr Sarwar Jameel Siddiqui
Q & A
All Closing
Mohabbat Ali
Senior Advanced Re-hab
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Parkinsons Support Group
On Thursday 3rd May 12 to 1.30 pm
Admission is free
At Aga Khan University sports and rehabilitation centre
Topics fo be covered
"Beyond Medicine"
video presentation by Dr.Parekh Joshi
On deep brain stimulation
Q & A Agha Khan Faculty
Video presentation on LSVT LOUD/ Big
Co ordinator Mohabbat Ali AKUH Faculty
Conducted by M. Irshad Jan director Pakistan Parkinson’s Society
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Dear Friend,
Parkinson’s Unity Walk……. a Catalyst for Hope and Promise for the Parkinson’s Disease Community
Karachi– On Sunday February 12th the Parkinson’s disease community comes together to instill spirit and optimism in those affected by the disease at the Parkinson’s Unity Walk, a grass root event for people afflicted by the disease.
Organized by the Pakistan Parkinson’s Society in collaboration with Agha Khan Hospital people affected with the disease, caregivers, families and friends are expected to lend their feet by participating in a gentle one mile walk and community education day in Agha Khan Hospital Cricket Ground Sports and Rehab Centre, Karachi.
At the Walk, attendees will be able to mingle with Caregivers, Therapy specialists and take take away brochures about alternate therapies and information on local support groups. To receive more information on Parkinson’s disease please visit our website www.parkinsons.org.pk or visit the booth at site.
Interested participants may register at walk site or online email info@parkinsons.org.pk or by SMS to 0302 8234832
Registration is free and each registered walker will get a sports Cap Free
The program is as follows:
| Date |
Sunday 12, 2012 |
| Venue |
Cricket Ground Agha Khan Hospital, Sports and Rehab Centre |
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Registration 10.30 AM onwards |
| Walk starts |
11.00 AM Welcome
Registration is FREE. Refreshments are available
Each registered walker gets a Sports cap. Free
Hospital shuttle will be available for transportation from parking lot to walk site.
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Pakistan Parkinson’s Society (www.parkinsons.org.pk) which was founded in 2008 with the objective of raising awareness and funds for PD patient centric support activity uniting the community under a common goal of winning the war against Parkinson’s disease. This event is in collaboration with The Agha Khan Hospital who are supportive of such community programs which include educational programs and Parkinson’s Support group activity. The walk provides an opportunity to help the Parkinson’s community to network and change the lives of people suffering from the disease. We look forward to your presence in support of the Parkinson’s community.
Join us. Make every step count
M. Irshad Jan
Director |
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Bharpoor Zindagi
1.The PPS Chairman Mr. Haroon Basheer called on the Director Ziauddin
college of speech therapy Ms Amina Asif Siddiqui. It was agreed that
PPS and ZCSLT will collaborate and provide support to each other .PPS
will invite members from the college faculty to address its seminars
and spread awareness of speech therapy treatments offered.
2.A memorandum of understanding was signed between the President of
the Pakistan Neurological Society (PNS) and PPS .Both institutions
agreed to support each other in activities related to create awareness
about parkinson's disease amongst patients, caregivers and medical
support staff.Dr. Prof.Shaukat Ali, Head of Neurology JPMC, and Mr.
Haroon Basheer, Chairman Pakistan Parkinson'S Society in a joint
statement stated that this will give further boost to achieving the
societies' goals and objectives.
3.The "Bharpoor Zindagi" Seminar/support group, scheduled at the Najamuddin Auditorium at the Jinnah Hospital on the 28th of July 2010, was postponed, due to the unforseen turbulent conditions in Karachi. We will be rescheduling the event very soon. Please check this site for further information on the Seminar dates etc.
Agenda: Parkinson's diseaese management .....complementary
therapy,balance between faculty ,senior neurologists and medical
support profession.
Contact: info@parkinsons.org.pk
SMS: 0300 8220196
0302 8234328
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New Booklet to be launched
on World Parkinson’s Day
Pakistan Parkinson’s Society in collaboration with
Glaxo SmithKline have launched a booklet titled
My Life, My PD for Parkinson's patients.
To order a copy write to us at info@parkinsons.org.pk or SMS 0302 8234328
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PARKINSON'S SEMINAR
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Energy Therapy - An Introduction
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For information contact
Supported by:
Glaxo SmithKline Pakistan Limited |
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| The Pakistan Parkinson's Society (PPS) is starting the WELLness series project in an effort to explore and promote the therapeutic value of creativity/music and generating wellness in the treatment and management of Parkinson's. |
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| Who should attend? |
| Primarily Parkinson's patients, their families and care givers. Medical practitioners, movement disorder support professionals will also find it useful as non traditional methods and practices will be introduced to create wellness in Persons with Parkinson's. |
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| WELLness Series.... Support Group |
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| Date |
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Saturday 1st August, 2009 |
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| Venue |
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Karachi South City Hospital Auditorium |
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| 11:00 AM – 11:30 AM |
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Opening Recitation of the Holy Quran |
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Opening remarks. Today’s Agenda. |
Mr. Haroon Basheer |
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Ice-breaker |
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| 11:30 AM – 11:50 AM |
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Music Therapy and the sounds of nature |
Mr. Haroon Basheer |
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Tea Break |
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| 12:00 Noon – 13:00 PM |
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"Keep Moving" Video assisted exercise
program under supervision of Senior
Physiotherapist Dow |
Dr. M Arif |
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| 13:00 PM – 13:10 PM |
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Video, "Practical Tips for Daily living" |
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| 13:10 PM – 13:30 PM |
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Q & A |
Doctors in attendance* |
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| 13:30 |
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Light refreshments |
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| Admission is free |
| Primarily meant for people with PD and their caregivers, doctors and other medical support personnel also welcome. |
| Space is limited so pre booking is recommended. |
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| *Dr. Nadir Syed |
| Dr. Faisal Mamsa |
| Dr. M Arif |
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| Haroon Basheer |
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| Pakistan Parkinson's Society invites you to a PD Awareness Seminar organised to mark World Parkinson's Day in collaboration with AKUH. |
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| Date |
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Saturday, April 11, 2009 |
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04:00pm to 06.00pm |
| Venue |
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Agha Khan University Auditorium |
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| Faculty / program |
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| Parkinson’s Disease: What everyone should know |
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Dr. Sarwar Siddiqui, Consultant Neurologist |
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| Living with Parkinson’s Disease |
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Dr. Mughis Sheerani, Consultant Neurologist |
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| New and emerging therapies for Parkinson’s Disease |
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Dr. Nadir Syed, Consultant Neurologist |
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| Psychological Aspect of Parkinson’s Disease |
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Dr. Wahab Yousafzai, Consultant Psychiatrist |
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| Speech Therapy for PD Patients |
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Ms. Fauzia Shah, Speech Therapist |
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| Question and Answer Session |
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| MIR RIAZ MAHMOOD |
| With deep regrets we share the news of the sad demise of our Founder Director & Vice Chairman. His contribution to the formation of the Pakistan Parkinson’s Society and active participation in its affairs will long be remembered. |
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| We pray to Allah to give him a place in heaven and his family and loved ones the courage to bear this loss… |
| Ameen |
| (Ina lilalahey wa ina alhey rajeon) |
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I hope you never fear those mountains in the distance,
Never settle for the path of least resistance,
Living might mean taking chances but they're worth taking,
Loving might be a mistake but its worth making,
Don't let some hell bent heart leave you bitter,
When you come close to selling out, reconsider,
Give the heavens above more than just a passing glance,
And when you get the choice to sit it out or dance.
I HOPE YOU DANCE.... |
| Haroon Basheer |
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| Organized by the: |
| Pakistan Parkinson's Society |
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| Pakistan Parkinson' Society in collaboration with the Agha Khan University Hospital is holding a Parkinson's Management and Support Clinic as part of the ongoing Support Group activity for People with Parkinson's (PwP's) and their care givers. |
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| Venue |
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Lecture Hall # 3 Agha Khan University Hospital Karachi |
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Saturday, January 3rd, 2009 |
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10.30am to 1.00 pm |
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| Multidisciplinary Sessions which will be handled by Specialists |
- Exercises for People with Parkinson's (PwP's)
- Occupational Therapy. Help for People with Parkinson's
- Step by step Speech Therapy, you have a voice
- Healthy diet and nutrition tips for PwP's
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| Question & Answer session/ Wrap up comments by Dr. Nadir A Syed, Neurologist AKUH. Coordinator Mr. Haroon Basheer, Chairman, Pakistan Parkinson's Society |
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| Admission is free, however space is limited so kindly confirm your intention to attend via email or call/ SMS 0300-8220-196. Booklets on management of Parkinson's will be available for attendees with compliments of the Pakistan Parkinson's Society |
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| GP's, medical students, nursing aides are also welcome to attend |
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| Seminar on 'Mood Management' to be addressed by leading doctors |
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18th October 2008 |
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11:00-12:30 PM |
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Venue South City Hospital Auditorium (opposite Barbq Tonite) |
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| Who should attend? |
| People with Parkinson's, their care givers and GP's seeking info on Parkinson’s disease management. |
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| Register on info@parkinsons.org.pk or sms/tel 0300 8220196 |
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| ADMISSION IS FREE |
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| Support Group Session focused on Speech Therapy |
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| On 9th August at AKUH Lecture Hall # 3 |
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| Time: 11:00 to 12:30 PM |
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| (Admission Free) |
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Aga Khan University |
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in collaboration with the |
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Pakistan Parkinson's Society |
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| A Support Group Programme for People with Parkinson's (PWP) and their care givers on the theme: |
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| Objectives: |
- To share individual experiences and coping strategies that work.
- To identify perceived gaps in Parkinson's Management.
- To identify needs of 'People with Parkinson's and hold tailor made PD management workshops.
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| Day |
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Saturday, May 31, 2008 |
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11:00 AM – 12:30 PM |
| Venue |
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Lecture Hall # 2, Aga Khan University Hospital |
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| Programme: |
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| 11:00 AM – 11:10 AM |
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Objectives of the Support Group. |
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| 11:10 AM– 11:20 AM |
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Introductions |
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| 11:20 AM– 11:45 AM |
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Personal stories and issues. Coordinated by Haroon Basheer, Chairman PPS Pakistan Parkinson's Society. |
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| 11:45 AM – 12:25 PM |
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Presentation by Dr. Muhammad Arif Ali, Sr. Physical Therapist, Department of Physiotherapy on the importance of regular exercise for People with Parkinson's (PwP). |
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| 12:25 PM– 12:30 PM |
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Concluding remarks by Dr. Nadir Ali Syed, Associate Professor and Head, Section of Neurology, Department of Medicine, AKU. |
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| All are cordially invited |
| Admission is free |
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| Q & A session on World Parkinson’s Day celebrated on April 10th 2008. |
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| Chairman PPS Mr. Haroon Basheer presenting the patient’s perspective. |
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